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Our beautiful 5 year old boy is living with Chronic Kidney Disease. He has been fighting this awful illness since being diagnosed at 4 months of age. If your look at him, he looks like a healthy kid, that is because CKD is a silent disease. Our gorgeous guy suffers with daily incontinence, growing issues, iron deficiency, speech delay and many learning difficulties, which as he gets older are becoming more prevalent. We have recently been told his learning difficulties and delay would have been caused by his failure to thrive in utero. We don't know when his kidneys will decide to fail, it's a horrible waiting game, but what we do know is that at some stage during his life he will require daily dialysis and possibly a transplant. For now we do what we can as a family to let him be a 'normal kid' and support him with his daily struggles. Please support us as we walk for Harrison this year as well as all others living with this awful illness.
I asked Harrison yesterday if it bothers him that he has CKD, to which he replied, 'nah mum it's okay'. He is the most resilient boy we know and couldn't wish for a sweeter, kinder or more beautiful boy that we could call our son.
We love you Harrison!!!
138 days ago
Best of luck ! X
139 days ago
140 days ago
Best of luck for Sunday! Much love xxxx
Go Harrison! Enjoy the walk :-) Keep smiling :-) From the O'Sullivan's
141 days ago
143 days ago
144 days ago
147 days ago
Such a gorgeous happy boy is Harrison. A credit to both you and Adam xx
151 days ago
152 days ago
Love from Grandpa xxx
162 days ago
Well done - great cause
164 days ago
Go team Harrison!
165 days ago
Amazing effort guys!!
Can’t resist that adorable face of his
168 days ago
169 days ago
171 days ago
172 days ago
Harrison, I am so proud of you. You are my superhero! Mrs Hagen
174 days ago
178 days ago
179 days ago
Really feel for you and all the best Adam!
184 days ago
Best wishes to your family and in particular to Harrison. What a trooper.
185 days ago
186 days ago
Harrison you are a little superstar!
187 days ago
All the very best to Harrison and his wonderful family.
188 days ago
My heart goes out to you and little Harrison
189 days ago
190 days ago
All the best for the fundraising and the walk in September
191 days ago
Good luck with the walk.
Good luck ...
192 days ago
All the best to your family.
You have got this little man!
193 days ago
Good luck with the walk, I hope they find a cure one day :)
Wishing you all hope and strength.
Great cause - good luck!
196 days ago
Good luck Ros and family with the walk!!
Love from Nanna and Grandpa xxx
Good luck with your fund raising Harrison. Love you! Nanna Ros xx
Thinking you all, hope the fund raiser goes well.
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