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Our beautiful 5 year old boy is living with Chronic Kidney Disease. He has been fighting this awful illness since being diagnosed at 4 months of age. If your look at him, he looks like a healthy kid, that is because CKD is a silent disease. Our gorgeous guy suffers with daily incontinence, growing issues, iron deficiency, speech delay and many learning difficulties, which as he gets older are becoming more prevalent. We have recently been told his learning difficulties and delay would have been caused by his failure to thrive in utero. We don't know when his kidneys will decide to fail, it's a horrible waiting game, but what we do know is that at some stage during his life he will require daily dialysis and possibly a transplant. For now we do what we can as a family to let him be a 'normal kid' and support him with his daily struggles. Please support us as we walk for Harrison this year as well as all others living with this awful illness.
I asked Harrison yesterday if it bothers him that he has CKD, to which he replied, 'nah mum it's okay'. He is the most resilient boy we know and couldn't wish for a sweeter, kinder or more beautiful boy that we could call our son.
We love you Harrison!!!
Best of luck ! X
Best of luck for Sunday! Much love xxxx
Go Harrison! Enjoy the walk :-) Keep smiling :-) From the O'Sullivan's
Such a gorgeous happy boy is Harrison. A credit to both you and Adam xx
Love from Grandpa xxx
Well done - great cause
Go team Harrison!
Amazing effort guys!!
Can’t resist that adorable face of his
Harrison, I am so proud of you. You are my superhero! Mrs Hagen
Really feel for you and all the best Adam!
Best wishes to your family and in particular to Harrison. What a trooper.
Harrison you are a little superstar!
All the very best to Harrison and his wonderful family.
My heart goes out to you and little Harrison
All the best for the fundraising and the walk in September
Good luck with the walk.
Good luck ...
All the best to your family.
You have got this little man!
Good luck with the walk, I hope they find a cure one day :)
Wishing you all hope and strength.
Great cause - good luck!
Good luck Ros and family with the walk!!
Love from Nanna and Grandpa xxx
Good luck with your fund raising Harrison. Love you! Nanna Ros xx
Thinking you all, hope the fund raiser goes well.
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